Thursday, August 11, 2011

Wonderful health update for Luiz


There is good news great news on the treatment front for Chronic Lymphocytic Leukemia (CLL). We care about this because Luiz is a CLL patient.

It has been all over the news, but I have been waiting for our trusted ally Chaya Venkat over at CLL Topics Updates (a top-notch CLL patient information and advocacy blog) to weigh in on the real story. She is brilliant on the subject and loved by many for her tireless advocacy and work translating medical research papers into plain English for the rest of us.

[Go to her blog and GIVE HER A DONATION! Medical conferences are expensive, and happen all over the world. She is a saint. Really.]

I will not pretend to be a medical researcher, but suffice it to say that some folks have figured out how to modify a CLL patient's own T-cells (the little guys who patrol your body and kill the bad cells) then reintroduce them into the patient whereupon they specifically attack and kill the cancer cells.

Preliminary results have been outstanding. So far patients have been in complete remission for 10 months (since shortly after the clinical trial was begun).
This is good news for our Luizinho.

Is this a cure? – no (not proven as such just yet). Is this available now? No, only in clinical trials. Is this a great breakthrough? Very smart people say YES. Are there risks? Yes.

Does this make us happy? YES!

News in the press is here: MSNBC ;   Yahoo News ;   New York Times ;  CBS News

11 comments:

bee and jay said...

Great news, guys!
Best wishes,
B&J

The Reader said...

that is fantastic!!! Keep us posted, and may Luiz's good health continue until such treatment IS readily available (or may he find his way into a clinical trial......)

Jennifer Souza said...

That's wonderful news. I hope you keep getting better and better news. I know it's a stressor dealing with chronic illness, and good news like this can make a difference.

Ray and Gil said...

This is great news Jim!
We watched it on "Good Morning America" earlier today and I thought of you guys.

Ray

Danielle said...

This is so great to hear. You and Luiz deserve the best, including many more happy years together. Any way to get him in on the clinical trial?? :D :D

Meredith said...

Excellent news :)

Jana said...

Fabulous news, hopefully he can get in on that clinical trial?? Happy for you two...

Born Again Brazilian said...

Hooray!

Gina said...

This is wonderful - I heard about it on the news and immediately thought of Luiz! I also feel that other people who live with this or have loved ones that do can feel a little bit more hopeful.

Lindsey said...

Some more promising hope! This makes us happy!

Jim said...

Thaks everyone - this is truly geat news. Luiz has many years before he is desperate for a treatment - so we have time for the science to catch up.

This is truly wonderful news.